Wednesday, January 13, 2010

Update

So, I thought I had posted stuff after 10/9/09, did the time go by that fast??

An update on all the fundraisers we did in October. I got a list from the NNPDF showing donations made in honor of Mitchell as of 12/15/09. We raised over $4,000 with the friends and family letter mailing and $1000 with the recycling drive. Thank you to everyone who showed their support by sending in a donation, dropping off recycling and/or supporting our Golden Spoon yogurt fundraiser. And of course, thank you for your continued prayers and encouragement!

Mitchell is doing fine. He just started with a new personal trainer 3 times a week to help him with strength and balance. He seems to like it and never complains. Of course getting his favorite Starbucks drink, a Venti Peppermint Mocha Frappichino, after his workout is a good incentive too!!

Mitch and I are getting ready to go to the National Institute of Health in Bethesda, MD. for a new clinical trial. This trial is to test a supplement to see if it has any benefit to NPC patients.

More about that later.

Hope everyone's new year started out great and continues to be a good year!

Persevering for a cure.......