Awareness and Research

NPC is a very rare genetic disease. There is no treatment or cure. It affects mainly young children who are diagnosed at a young age and rarely live past their teen years. Awareness is crucial for such a rare disease in order to raise money for research for treatment and a cure. This is why we are going public with Mitchell's story. We need to take a proactive approach and focus on the difference we can make with this disease, instead of focusing on the neuro -degeneration that will eventually happen in Mitch. And maybe, before it is too late, there will be some treatment or cure that will save him.
If you want to know more about this disease and see how you can help, please click on the link http://nnpdf.org.
We also plan on doing some fundraising within our community, so please check back for updates and info.